Thursday, August 02, 2012

Pouring out

This is the way of my vain heart: My journal gets the bad/hard and the blog gets the good/fun and so when I fall silent here, it's because my heart is full of things that I wish weren't there and I'm afraid they'd come spilling out here and that would be ugly.  Not that you folks haven't seen me in my ugly state in person, but here, I still like to think I am fooling someone into thinking I have it together.  I don't, by the way.  This is one of the things I have been silent about:

Halfway through her pregnancy, my friend Ruth and her family found out that the baby girl, Pearl Joy had alobar holoprosencephaly (HPE), a neural disease with low chances of survival.  Literally her diagnosis was 'not compatible with life'.  I read each email from their family as the pregnancy progressed with hope and anger all balled up in one.  I prayed, I cried, I fought back doubt, I wished for all things to be made new again, I embroidered God's promises on a square of a quilt for Pearl.  And then she came.  And then she lived.  She lives still!  She was born on July 27th at 12:07am.

Written before her birth, Pearl's father's words about her life, even if it was only in the womb, struck a deep chord in my heart.
 "There is a weighty joy surrounding all of her life, but to deny the joy and only focus on the sadness would be doing her a terrible disservice. Like all of us, there is so much more to her than her weakness."

I am continually being amazed by the work of God in the lives of those He loves. (Even when we don't love Him back).  I am in awe of the love and help and community poured out on this family.  I am rejoicing in the reminder of who God is.  In the midst of politics, controversy, trouble, strife and madness, there is a baby girl born to a family and in her birth, there is the boundless love of God poured out on not only their family, but the community where I live and on every person who has read her story.   I pray my life may be poured out in such a way.

Phillipians 2:17 But even if I am being poured out as a drink offering upon the sacrifice and service of your faith, I rejoice and share my joy with you all. 18 You too, I urge you, rejoice in the same way and share your joy with me. 

You can read more about Pearl in the following places:
A letter from her mother at my friend Amanda's website.
On her website where her father posts 
You can help support their family financially through this time here or here.

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